Why do people with liver disease and viral hepatitis need an app like LiverWELL and what can it do for your condition? Melanie Eagle explains.
Steven Taylor says volunteering for Hepatitis Victoria," gives you a chance to put your money where your mouth is, to give you some responsibility, to make you feel a bit better about the world you inhabit."
Melanie Eagle has a unique perspective on how the global battle against viral hepatitis is faring. In this short podcast, she reflects on what she learnt at the Global Hepatitis Summit in Toronto, and the circumstances that make Georgia's battle in Central Asia, so unique.
Thi reflects on her experiences disclosing and discussing her condition to the various people in her life – including friends, family, and co-workers.
Noon Juba and Akuot Tebir are graduate volunteers doing research into the awareness of viral hepatitis in Sudan and in Australia's Sudanese community.
Their fascinating study probes the attitudes and perceptions and if those approaches have carried over into the growing Sudanese community in Australia.
Chris Carter is the CEO of North West Melbourne Primary Health Network (NWMPHN) and a Hep Hero.
"The challenge is trying to get viral hepatitis front and centre and PHNs have a couple of roles; analysis of what is happening in the catchment and filling the gaps… we’re both a planner and a funder,” he says, but it is a complicated problem to tackle.
Manuela Urdiste is one of the key people behind the creation of Little Hep B Hero- a family resource about hepatitis. She is part of the Hepatitis Victoria's Community Advisory group which guided the project through conception to completion.
"As a mum of two kids, and also living with chronic hepatitis B it was a good chance for me to express my thoughts, my feelings and my ideas to this advisory group, it was a chance for me to be part of this team... Trying to explain to my kids aged 5 and 8 was quite difficult, telling them what the liver is... but step by step you make them aware."
Jennifer MacLachlan is an epidemiologist at the Doherty Institute for Infection and Immunity where she collects and analyses data concerning viral hepatitis in Australia. Jennifer discusses what ‘bigger picture’ data reveals about on-the-ground changes, and what Australia urgently needs to do to have a realistic chance of achieving the 2030 elimination targets.
Priscilla Hiromi Correa is a Brazilian dietitian with a special interest in the liver and people living with liver disease. She recommends against 'fad' diets and is in favour of eating based on Australia's dietary recommendations, for optimum liver and general overall health. A caveat for listeners; consult with your health practitioner about your personal circumstances before following any advice!
On 17 March Hepatitis Victoria CEO Melanie Eagle was invited into the JoyFM studio to talk about the launch of #StigmaStops, our year-long campaign to raise awareness and help tackle stigma launched on Zero Discrimination Day earlier in March.
Meg Perrier, Hepatitis B Outreach Project Officer is running a joint project with Cohealth and the Wingate Avenue Community Centre in Ascot Vale, to raise awareness about hepatitis B and get people at risk treated.
Three times lucky: HEP Hero Allan Dumbleton movingly talks about his long journey to rid himself of the hep C virus. He advises anyone with hep C to take the same path, no matter the difficulties. "There are drugs out there for anyone in my position to be cured... you have a lot to look forward to," he says. He also reflects on the stigma he faced.
HEP Hero Margaret Hellard talks about the latest developments in treatments for viral hepatitis and the role stigma plays in making it such an insidious disease.
Art Inside 2017: Educating prisoners about viral hepatitis through self-expression. Sione Crawford, Health Promotion Officer talks about the thought behind the project.
“People in prison are at least 20 times more likely to have hepatitis than the rest of the population and we think at least a quarter of the prison population has hepatitis C, but not everyone gets tested and the number with the virus is likely to be higher”.
Not on track: Hep Summit in Brazil reveals elimination goal by 2030 a mirage.
Listen to Melanie Eagle explain what she learnt in Brazil at the recent World Hepatitis Summit and why, despite some progress, there is a huge amount of work that needs to be done.
Melanie Eagle CEO speaks with Red Symonds on ABC Melbourne about the Love Your Liver public campaign in Melbourne's north-west urging Victorian's to get tested and treatment.
2017 Nobel Peace Prize awardee and HepHero Tilman Ruff talks about how we can conquer hepatitis and end the threat of nuclear war
Melanie Eagle, CEO Hepatitis Victoria speaks on the next five years fighting hepatitis and liver disease.
Sione Crawford, Health Promotion Officer at Hepatitis Victoria reflects on his involvement in the International Symposium on Hepatitis Care in Substance Users in New York